The Spanish Society of Pediatric Cardiology and Congenital Heart Disease has published a fundamental guide to offer information to all parents or caregivers of children suffering from heart disease, whether congenital or acquired.
He Handbook for Parents of Children with Congenital Heart Disease will collaborate in the learning of adults to provide children with some cardiac pathology better care. The manual can be accessed through secardioped.org (PDF).
Parents who want the printed edition of this guide may request it for free (while supplies last) through the Menudos Corazones Foundation, a non-profit organization composed of family members of children and young people with heart disease or through this form of the Spanish Society of Pediatric Cardiology and Congenital Heart Disease. These forms are also found in the Pediatric Cardiology Units of the Spanish Hospitals, just send it by post.
Surely the information provided by medical experts will be very useful, as it is clear, concise and effective information on the possible problems and solutions to which congenital heart disease can lead.
